Join us!!!! We are so very excited!!!
TEAM JODY will be walking in the 2009 PKD Foundation walk!
PKD Foundation holds an annual fundraising walk and we have registered. This is a decision that we weighed heavily on because in January I signed up to walk in the Susan G Koman 3-Day. The 3-Day is something I have wanted to do for years. Last year our friend Stefanie asked me to walk, at that point we had just found out we were expecting Jody. So this year I signed up thinking it would be a huge motivation for me to knock of a couple pounds after Jody arrived.
All of this was before we found out that Jody’s condition was terminal and that the cause was Autosomal Recessive Polycystic Kidney Disease (ARPKD). ARPKD is a rare genetic disorder, occurring in approximately 1 in 20,000 individuals. It affects boys and girls equally and often causes significant mortality in the first month of life.
Now, I will walk in the 3-Day to raise money for breast cancer, hoping that soon there will be a cure. But more importantly, our entire family will walk in the PKD walk on October 11th in honor of Jody who loss we are still reeling from.
We invite you to walk with us in his memory or contribute to TEAM JODY, no large amounts are necessary.
To visit the team site go to http://www.pkdcure.org/teamjody.
If you want to learn more about ARPKD visit the PKD Foundation website at http://www.pkdcure.org/tabid/1150/Default.aspx.
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